Girl with rare 'werewolf syndrome' is dubbed 'child from heaven' in royal visit

14 September 2023 , 14:25

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Missclyen Roland from Bintulu, Sarawak in Malaysia has a rare congenital syndrome (Image: Newsflash)

This is the two-year-old girl born with the rare werewolf syndrome that causes her to grow excessive facial and upper body hair who has now caught the attention of royalty.

Little Adik Missclyen, who was also born without nostrils, had the chance to meet her Malaysia's monarchs when the Sultan and his queen visited her hometown of Bintulu while touring the island of Borneo. Adik and her parents, Roland Jimbai, 47, and Theresa Guntin, 28, were among the residents that lined up to meet the royals on September 11.

Sultan Yang di-Pertuan Agong Al-Sultan Abdullah Ri'ayatuddin Al-Mustafa Billah and his consort Raja Permaisuri Agong Tunku Azizah Aminah Maimunah Iskandariah walked up to greet the little girl who suffers from congenital generalised hypertrichosis (CGH), which causes the extra hair growth.

The father of the two-year-old expressed gratitude to the sultan (Newsflash)

The girl's rare condition does not affect her health (Newsflash)

She was also born without nostrils. In a heartfelt gesture, the royal couple referred to the child as "anak syurga," which translates to "a child from heaven." Sultan Abdullah expressed words of encouragement to Roland before he and the Queen stopped to pose for pictures with the family.

Roland told local media: "It was worth the wait when Sultan Abdullah, Tunku Azizah and their children met up with our family and took pictures with Missclyen. I am incredibly happy that we had the chance to meet the King and Queen. I am still at a loss for words. The King told me to take care of Missclyen as she is God's blessing." He added: "I hope to meet the royal couple again if possible."

Boy sent to different country while playing hide and seek reunited with family

Roland said people often give his youngest daughter Missclyen strange looks. Some have even called her "animal child", the father claimed. He said: "Initially, we were really hurt and felt stressed. We felt upset and began avoiding bringing her to public places, except for hospital follow-ups. We were so afraid of what people were going to say."

Roland added that the girl's rare condition does not affect her health, but they take her for occasional medical check-ups just to be sure.

Ryan Fahey