Real life Rapunzel 'fearful' as she loses 7ft long hair after crushing diagnosis

08 July 2023 , 20:43
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Real life Rapunzel
Real life Rapunzel 'fearful' as she loses 7ft long hair after crushing diagnosis

A real-life Rapunzel has been left living in fear after losing her seven-foot-long hair due to a devastating diagnosis.

Rin Kambe's luscious locks began to disappear after she was diagnosed with alopecia areata and started seeing chunks of her hair dropping out.

The 43-year-old, who is a dancer, is well-known on Instagram for her glorious hair - and has over 114,000 followers on the social media platform.

But earlier this year, her life started to change after she was diagnosed with the autoimmune condition.

The influencer, from Tokyo, Japan, said it was "difficult" to face reality, as she explained: "When I woke up in the morning, I didn't feel like myself.

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Real life Rapunzel 'fearful' as she loses 7ft long hair after crushing diagnosisRin Kambe before she began losing her hai (Jam Press/@rin_rapunzel)

"There were days when it was so hard that I didn't even want to go to the supermarket. I was afraid and filled with fear.

"The anxiety eventually turned into despair and I felt as if I was watching myself breathing while struggling with anger and loss without any motivation.

"Now that I think about it, I think they were the days when I couldn't fully accept what was happening to me."

Rin first began growing her hair when she was 25 years old and says she used her locks as a "weapon of expression".

Real life Rapunzel 'fearful' as she loses 7ft long hair after crushing diagnosisThe influencer said it was difficult to face reality (Jam Press/@rin_rapunzel)
Real life Rapunzel 'fearful' as she loses 7ft long hair after crushing diagnosisThe real-life Rapunzel is well-known on Instagram for her glorious hair (Jam Press/@rin_rapunzel)

At its longest, it measured a huge seven-and-a-half foot long, which is roughly the same size as a giraffe's neck. She was also known for having the longest hair in Japan.

Rin said: "I grew my long hair out as a weapon of expression, my hair grew more and more and I was able to work as a model for long hair.

"While I was unable to work on stage due to the coronavirus, my long hair supported my life.

"I'd spend three hours a day caring for my hair with shampoo, treatment and a hairdryer – and my hair was my treasure.

"I love my fans who love my long hair from the bottom of my heart, and I raised my long hair with the same feeling of loving and raising my children."

Real life Rapunzel 'fearful' as she loses 7ft long hair after crushing diagnosisRin as she began losing her hair (Jam Press/@rin_rapunzel)
Real life Rapunzel 'fearful' as she loses 7ft long hair after crushing diagnosisRin was diagnosed with alopecia areata earlier this year (Jam Press/@rin_rapunzel)

Despite losing a huge part of her identity, Rin says she is learning to love her new look and her health battle has only made her stronger.

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She said: "There are many things that this disease and my lost long hair has taught me.

"But one important thing is that anyone can be proud of who they are at any time.

"I felt ashamed or miserable when I got sick but now I feel proud of myself.

"That is because I learned that living itself is beautiful.

Real life Rapunzel 'fearful' as she loses 7ft long hair after crushing diagnosisThe dancer said she felt ashamed at first (Jam Press/@rin_rapunzel)
Real life Rapunzel 'fearful' as she loses 7ft long hair after crushing diagnosisRin is now proud of herself (Jam Press/@rin_rapunzel)

“No matter what happens, it is wonderful to live forward.

"I'm starting to find it fun to do my dancing with a shaved head now, it almost feels as though I have been reborn.

"It's strange, I'm starting to like new myself."

Rin is now on a mission to help raise awareness of alopecia and send courage to those who may be struggling.

She added: "I would be happy if I could bring courage to people with the same disease or who are suffering from hair loss due to side effects of drugs.

Real life Rapunzel 'fearful' as she loses 7ft long hair after crushing diagnosisRin had the longest hair in Japan (Jam Press/@rin_rapunzel)
Real life Rapunzel 'fearful' as she loses 7ft long hair after crushing diagnosisShe said she now likes her new look (Jam Press/@rin_rapunzel)

"People who are suffering from other diseases, people who are seeking healing, I would like to send courage, energy, and mental healing to everyone as I try my best to overcome the present."

Alopecia areata is an autoimmune disorder that can lead to unpredictable hair loss and affects 147 million people worldwide, according to Medical News Today.

It can affect anyone, regardless of age, gender, or race, even though most cases develop before the age of 30.

There is currently no cure for alopecia areata, but common treatments include the use of corticosteroids, powerful anti-inflammatory drugs that can suppress the immune system.

Other medications can also be prescribed to either promote hair growth or affect the immune system.

Emmie Norton

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