Celine Dion no longer has control over muscles but still dreams of performing

19 December 2023 , 06:34

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Celine Dion is struggling with a rare neurological disorder (Image: Getty Images)

Celine Dion's older sister Claudette has given a devastating health update revealing to fans that her famous sister no longer has "control over her muscles."

It comes as the legendary My Heart Will Go On singer announced that she was forced to cancel her world tour last December after discovering she was diagnosed with a one-in-a-million incurable condition. Last year, the 55-year-old star revealed that she was struggling with a neurological disorder known as stiff person syndrome. This devastating health condition impacts the brain and spinal cord and causes the body to attack it's own nerve cells leading to difficulties with muscle control.

This week, her 74-year-old sister shared an update on the singer explaining that despite her tireless dedication to get better, she is now unable to control her muscle movement. Claudette told 7 Jours: "She's working hard, but she doesn't have control over her muscles. What breaks my heart is that she's always been disciplined."

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Her sister says that Celine still dreams of returning to the stage someday (AFP via Getty Images)

She continued: "She's always worked hard. Our mother always told her 'You're going to do it well, you're going to do it properly.'" And added: "It's true that in both our dreams and hers, the goal is to return to the stage. In what capacity? I don't know."

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Her sibling explained that scientists have done minimal research to find a cure due to the progressive condition being so rare and impacting such a small portion of the population. She added t that her family has not discovered any medicine that works for the Grammy award-winning singer, but they believe that "having hope is important."

She said that what has been an inspiring part of Celine's journey is the undying support from her devoted fans. Claudette shared that her family's charity the Fondation Maman Dion is still being constantly flooded with love and messages of hope for Celine. She said that they constantly receive phone calls sending their prayers for the singer in addition to other "messages, presents, and blessed crucifixes" all wishing for a safe recovery.

Back in October, Celine was however in good enough health and able to take the stage without the assistance of a wheelchair to perform for the first time in three years. During a NGL game in Las Vegas following a matchup between the Vegas Golden Knights and Montreal Canadians, the singer took the stage and "sang a few notes" for the stadium.

Caroline Gaspich