Mum left bedbound in pain after doctors mistook lifelong disease for infection
A mum has been left bedbound after claiming doctors mistook her symptoms for an infection when she actually had a lifelong disease.
Kirstie Haysman says she was unsatisfied after a trip to the doctors for her symptoms. She claims they told her she either had an auto-immune disease or an infection. However, Kirstie was actually suffering from Lyme disease.
She first noticed her symptoms in 2015 and after years of struggling, went to Mexico for a blood test where she received the diagnosis.
She now wants to raise awareness of the condition and encourage others who are suffering with mystery symptoms to get tested.
Lyme disease is a bacterial infection that spreads to humans through infected ticks and causes high temperature and fever, headache, muscle and joint pain and tiredness and loss of energy.
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Kirstie receiving treatment in Mexico, February 2023 (Kirstie Haysman / SWNS)Kirstie, from Watford, told Wales Online: “[If the infection had been diagnosed] it could have cleared up in 28 days with antibiotics - now my body is shutting down and my husband has to pick me up to use the toilet and have a bath.
"I was doing high intensity training before, I was very fit and it's now at the point where when I wake up my entire body is weak and hurts everywhere.
“I pray it gets better so I can walk around – I've been outside twice in last the six weeks, other than that my life is in bed. This all could have been avoided if they’d done a simple Lyme test.”
Kirstie's first noticed fatigue and pain in her joints after a visit to a rheumatologist where she was told she had a connective tissue disorder. She says she was prescribed a high dose of steroids.
But her health continued to deteriorate and Kirstie says her hands became ‘disfigured’ - leaving her with painful swollen joints and unable to pick things up.
Kirstie's first noticed fatigue and pain in her joints (Kirstie Haysman / SWNS)
Kirstie suffering from swollen joints in her fingers (Kirstie Haysman / SWNS)She says her blood tests didn’t show any problems and doctors assumed she was suffering from an auto-immune disease. As doctors believed the condition to be auto-immune, they attempted to suppress her immune system - but Kirstie now believes this worsened her condition.
Following further tests she was told the long-term use of steroids had led to her bones deteriorating – with a rheumatologist telling her she had ‘the bones of a 70-year-old'.
She continued to take steroids and says due to long-term use she is now struggling to stop using them, she says.
In January 2023 an acquaintance suggested she might be suffering with Lyme disease and Kirstie began researching the condition. She organised to travel to Mexico for blood tests specifically for Lyme disease in February and was left shocked when the results came back positive.
After returning to the UK with her diagnosis, Kirstie says she was put on three different antibiotics on a 12-month course and says she has also used herbal remedies to try to combat the illness. And she says she is still battling to find doctors who understand the condition.
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Kirstie said: “It wasn’t until this year that I met someone who said, 'Do you think you’ve got Lyme disease?'. I’d been taking steroids, living on pain killers and had tried every low inflammation diet you can think of.
“I just assumed I had an autoimmune disease like Lupus – Lyme is called ‘the great imitator’ because it imitates these autoimmune conditions. I'm bedbound and I had to give up my job as a healthcare professional, I was a chiropodist and couldn't use my hands anymore.
"My daughter is going for a blood test for Lyme disease - doctors don't normally offer the test for under 16s but because it's in the family they've agreed to see her. I want to get the word out that if you have autoimmune conditions or rheumatic disease to get tested for Lyme.
“It’s so frustrating - in your mind you want to be working and socialising but you're stuck in body that can't work.”
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